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Life with Father

  

by: puzzled

Fri Mar 12, 2010 at 15:31:58 PM EST


(It has been said that society is judged by the way it treats it's elderly... - promoted by newpioneer)

aging parents

And mother.

Caring for two elderly parents with various health issues is a juggling act.  Adding their demands to those of my own family, job and community obligations is like juggling three flaming torches and a bowling ball.

In addition to the normal crap an average person keeps in his or her brain, the caregiver of an elderly parent needs to keep Social Security numbers, medication lists and dosages, medical history information and doctors phone numbers, either committed to memory, or on an ever-present piece of paper, or both, because under stress the brain tends to go blank and papers tend to go missing.  Two parents?  Double the information, and hope like hell you don't mix them up in the throes of an emergency.

puzzled :: Life with Father
People are living longer, and dealing with what they call the super-elderly (80+) takes its toll.  Watching their slow, inevitable decline is hard enough, but the crisis moments are worse.  The middle-of-the night phone calls telling me one of them has fallen, the trips to the Emergency Room for various and sundry issues, the protracted hospitalizations requiring complete rearrangement of schedules for weeks on end.  Those are the things that wear down caregivers and family members and push everyone to the point of exhaustion.

As organized as we think we are-I'm at the point where I keep a bag in my car with their medication lists, a book and a pair of socks (Emergency Rooms always seem to be cold), there are always details to be seen to, and an ever-changing landscape of papers.  Powers of Attorney?  Check.  Health Care Surrogate forms?  Check.  I even had extra copies made and store them in my car with the other hospital necessities.  But there is more.  We're at the point where we need to consider whether or not to execute DNR orders.  That's a minefield.  Dad says he's ready to die, and would be willing to execute one, but having the conversation with him and his doctor feels like taking a step into the abyss.  

When you're caught up in the quotidian acts of personal care and endless rounds of doctor visits, it's hard to think of the big picture items.  Just trying to get them to decide what kind of funeral and burial they want was excruciating-who really wants to contemplate their own mortality, especially when it's rushing toward you at warp speed?  

The wills need to be reviewed periodically, and there are always changes and things we've overlooked.  Making lists of personal items they would like bequeathed to friends and family is a difficult exercise, but essential to avoiding bickering down the road.  Even when you think you have all your bases covered, there's always something else, and usually it occurs to you while you're cleaning up shit, both figurative and literal.  

Of course, just beneath the surface lurks that little voice telling you "You're next."  You wonder if your kids will hold a basin for you while you vomit for days on end from the effects of antibiotics.  Will they call once a week, or be more involved-helping with chores around the house and maybe bringing dinner?  

Handling meals for my parents has been a team effort-my kids bring them takeout once a week or so, my brother picks up something for dinner when he's in town, and I often cook extra and bring them a portion of whatever we're having for dinner.  This means there are nights where my family eats without me, because I'm detained by some problem-a leaky faucet, a tv that isn't working-sometimes I think it's more about having company than about whatever they ask me to fix.

Putting them in a nursing home would be a whole lot easier on me, but would have a serious impact on their quality of life.  As the baby boom generation moves from retirement to declining health, we will be looking for alternatives to being warehoused.  Most of us have fewer children than our parents did, and families are now more likely to be scattered all around the country, if not the world.  This puts a wrench in the old model of family members taking care of elderly relatives, so we'll need to find new alternatives for our "golden years."  Elder Cohousing  is a fairly new concept that sounds much more appealing than traditional assisted living, and I'm sure we can come up with other interesting ideas.  I have no idea when or if I'll be able to afford to retire, but when I do,  I'd like to find a place in Asheville, so I can take advantage of their Center for Creative Retirement.  

If not, maybe we'll get those death panels.


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Life with Father | 19 comments
puzzled jar (8.00 / 7)
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"Indeed, if a poor man will spend a year in prison for stealing out of hunger,
how high would the gallows need to be to hang the rich man?"
~The Patrician in 'Snuff' by Terry Pratchett



i will be back later (8.00 / 5)
i just got a call that i will soon be having company....
as it is my friend the Dr. who brings me free meds i cannot say no (besides i so enJoy her company!)

excellent post, hitting on so very many matters....

"Indeed, if a poor man will spend a year in prison for stealing out of hunger,
how high would the gallows need to be to hang the rich man?"
~The Patrician in 'Snuff' by Terry Pratchett



my heart goes out to ya, puzzled... (8.00 / 6)
what a great post, and if no one's told ya lately... you're doing one hell of a job.

It's not what you look at that matters, it's what you see. ~ Thoreau ... and, do no harm

thank you (8.00 / 7)
I appreciate it.  Taking care of one's parents can seem like an endless, thankless task at times, but there's the satisfaction of knowing you're doing the right thing.

[ Parent ]
Shit Puzzled (8.00 / 8)
I feel like you wrote my story but 10 fold.

For me it has been a 10 year ride starting with what you describe and after loosing dad moving mom in with us.  It is so much easier to have her here.  The juggle is easier now with hospice it is even better, I no longer have to take her to the doctor with a nurse coming once a week, getting her meds in the mail.

I too have that nagging voice, we're next, my husband and I have decided we are going to do it like his parents did.  At one point they refused to go to the doctor any more.  They both died earlier and at home without getting to the point of needing so much help.

When it comes down to just breathing, eating and pooping what the hell is the point.  Yet I can make that decision for myself but not for my mom.  I know she would have never wanted to get to this point but what do you do but deal with what is.

I know where you are at and it is exhausting, physically and emotionally.
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(((((Kathleen))))) (8.00 / 7)
you have my heart, as well.

I know where you are at and it is exhausting, physically and emotionally.


It's not what you look at that matters, it's what you see. ~ Thoreau ... and, do no harm

[ Parent ]
Thank you Newp (8.00 / 6)
having a community of such loving people lifts my spirits everyday.

Bear Shake Tree Pictures, Images and Photos

[ Parent ]
Good post puzzled (8.00 / 8)
I'm glad your parents have been able to stay in their home so far.  While some people do okay in a nursing home so many others don't.

I worry that in the next few years I will be dealing with a similar situation with my mom.  Luckily we are a close family and tag team well.  I have a small house and we already have 4 adults, 3 cats, and 5 guinea pigs living here but we can squeeze mom in if the time comes.  My hubby has said he doesn't mind if she lives here either.

Sounds like you are doing a great job with the difficult circumstances.  (((((puzzled)))))


Thanks for sharing your story, puzzled. (8.00 / 8)
The quote "
Society is judged by the way it treats its elderly",
imho, is spot-on.

The more things change, the more they stay the same.

the part that was (8.00 / 7)
 hardest for me was being the mama TO the mama & dad.
emotionally it was just draining... to realize the decisions they are making are off in fairey world & having to take charge, without stepping on toes or causing hurt feelings.... & not getting your feelings hurt when they say hurtful things because really they don't have all their marbles anymore, some have been misplaced... buy yet still it hurts because she IS the mama afterall....
i took care of my in-laws for a coupla years, they moved back to the farm & we moved into their house even though our house is about 100 yds away.... things just can go so wrong so quickly.
our boy was a senior in high school. i feel still that in some way i let him down. changing my focus from him to them.
but he was more able to fend for himself....
hospice was a blessing. i was never so glad as i was when hospice was suggested (again) & they didn't get their backs up over it "who is hospice?"... wonderful, wonderful experience with them...
and yes. we're sitting at the adult table now, in fact it now belongs to us.... so we must sit at head & tail. a strange experience for two who sat at the kids table for so, sooo long.
know that what you do, the patience you show, your attitude & demeanor will come - almost innately - to your kids, they will remember how it should be done, because people learn what they live. that's what i told my m-i-l every time when she asked "why? why are you tending to me?" (we had a bit of a rocky relationship y'see) "i'm teaching my kids how i want to be treated"
i have no doubt my kids will tend me when i get really old. our boy will prolly be sullen about it, because he is at heart a ver sensitive child- he builds walls to keep his feelings from being hurt.....his wife will shame him into helping, doing their part. our girl will be right there, either moving in w/us or moving us in w/her. i have no doubt. she will be teaching her girl y'see....

"Indeed, if a poor man will spend a year in prison for stealing out of hunger,
how high would the gallows need to be to hang the rich man?"
~The Patrician in 'Snuff' by Terry Pratchett



There you go (8.00 / 7)
getting me all teary eyed again Ria.

Beautiful, and how it should be.  With each generation helping the next generation and the previous one too.  

I've always felt so bad for elderly people that don't have any close family.


[ Parent ]
It's a problem (8.00 / 7)
My mom's eldest sister and her husband had no kids, so when they needed care, they went into a local nursing home.  They'd had some help at home, and still had the funds to pay this woman to come to the home and do the little things they needed--buy them new underwear, bring snacks, etc.

We would visit a few times a year, but they lived clear across the country, and our efforts seemed so inadequate.  After my uncle died, we tried to get my aunt to move closer to us--scoped out nursing homes in our area, but she wouldn't leave the community where she's spent her entire life.

My kids were school age while all this was going on--like maybe 8 and 12 when my aunt and uncle went into the nursing home.  I was homeschooling them at the time, so they'd travel with my mom and I and saw firsthand the effects of aging.  I think it was overall a good experience for them, and hopefully made them less likely to want to shuttle their dad and I into a home at the first signs of our decrepitude.


[ Parent ]
How sad that (8.00 / 7)
you couldn't convince your aunt to move closer to you, but I can see your aunts view too.  I bet that community had been a big part of her life and all her memories of her hubby were there too.

One of the most unique and heartwarming things I've run across is a brother and sister that took care of their elderly neighbor Martha, for years in her home.  When she got to the point she couldn't stay in her house they moved her in with them. That was about 5-7 years ago.  Martha is in her 90's. They bring her out for breakfast about everyday and take her to get her hair done every week, and of course the many doctors appointments.  The sister, Paula, got married last Aug., but she still drives over to take care of Martha when Ed is working.  Unfortunatly Martha has been going downhill mentally lately and sometimes thinks Ed is her husband.  A few weeks ago she even told him she wants to have a baby.  She also is to the point she doesn't want to go get her hair done anymore.  I don't know how much longer Paula and Ed can keep it up, but they sure have done a fantasitc job.


[ Parent ]
We just a few weeks ago (8.00 / 5)
traveled to Oklahoma to get Mom into assisted living. She's 88 this year (only parent we've got left), has lived alone since Dad died in 1994. Lost sight in one eye, the other is going. Too stubborn to use her walker, so she falls regularly. Luckily has tough cowgirl bones, but it was just a matter of time before she broke a hip. She was isolated because she couldn't go to the senior center or out with her friends anymore because she wouldn't use the walker and they were all afraid of liability. Brother lived an hour away, but was there several times a week.

He found an assisted living facility a mile from his home. She has a small but nice apartment into which we moved her furniture and photos and paintings and knick-knacks. But she is depressed now and doesn't like it one bit. We can't go live with her in her house, there's no work in that tiny OK town. She has home health to check on her and do basic housework, the center serves three meals a day, she has a kitchen in case she wants a snack or an extra meal. Her short term memory is gone, no new information gets in. She can't handle her own care at this point, and we live several states away. Brother and his wife are close and caring, though it's not easy when the roles get reversed. Hang in there, puzzled!


[ Parent ]
yep (8.00 / 7)
When I get tired of the endless demands, and want to roll my eyes and bitch, I remember that I'm next in line, and if I can do my lot without complaining, I'm setting an example for my kids to follow when I'm old and crotchety, and my health is fading faster than my pride.

[ Parent ]
Yesterday I heard my mother's voice (8.00 / 6)
coming out of my mouth.  A stern, no nonsense, I'm not putting up with bull kind of voice.

AND I though holy shit I am sure she had no idea that that was going to come back and haunt her.

I realized with Alzheimers that gentle nudging works only part of the time.  Sometimes I have to be stern to get her moving or settle her down, a reminder that she has no choice in some matters.

Example I will be putting her on the toilet, pants are down she is half way to sitting and decides she is just not going to do it.  She is rigid, stuck half way between standing and sitting, she has decide she is not going to sit or stand up. Now I can say gently with please on it until I am blue in the face I am talking to a wall, BUT when I use her voice that I hear in my head from childhood she moves, maybe she thinks it is her mother talking she does call me mother sometimes.

Bear Shake Tree Pictures, Images and Photos


yes (8.00 / 6)
oftentimes you really have to BE the mama.
& it puts you in this really weird place.... hearing your mom & being mom to your mom all at the same time... it's like your inside scales have all gone wonky for a little bit, y'know? & then they quit asserting their independence & do what you've told them to & life moves on again...

my m-i-l called me all kinds of names, mama, ria, granny, her sisters names, her aunts names, her daughters name.... i never did correct her because i knew who she was talking to.... i felt there was no real need to cause any more confusion within her... it wasn't something that really mattered y'know? my name is not important. that she was still talking & telling me stories was.

try to take time to write down the stories... even if its ones they tell over & over & you think you'll never forget...
& encourage them to tell new stories... take advantage by asking the questions you always wanted to... (^.^)
write 'em all down, take 20 minutes each evening & jot down any new story that was told that day....
because you will forget the little details & later... well, that notebook will bring so much comfort. it'll be like you're hearing them again from your parents mouth.
really.

"Indeed, if a poor man will spend a year in prison for stealing out of hunger,
how high would the gallows need to be to hang the rich man?"
~The Patrician in 'Snuff' by Terry Pratchett



[ Parent ]
This reminds me (8.00 / 7)
I had totally forgotten, thank you!!

My parents paid for a family reunion every year at a ranch in the mountains.  Year after year the family would gather at circle 8 ranch, all were welcome from cousins, aunts, uncles and grand-kids all of us would spend a weekend in Sept.  One of the last years we did this my sister in law sat her video camera down and spend long hours videoing my parents and my mom's sister talking about their lives.  Coxing more and more details we had never heard from them.  Memory after memory flooding out as one would jog another one and it went all weekend.  It was wonderful and I honestly think they were energized by the fact that we wanted to hear every detail. Their childhoods, the depression, world war II, going to college (for women in the 30's and 40's), segregation in the south, integration of Central High School in Little Rock, Ark. where they went to high school. Amazing family history.

This place is where we spread my father's ashes.

The idea of the notes is a good one, I wish I had done this she is too far gone now but thank god we have the video tape, thank you for helping me remember we did this I totally forgot!

Bear Shake Tree Pictures, Images and Photos


[ Parent ]
So true Ria (8.00 / 7)
One of the most important things we learned, and learned quickly, with dad and his alzheimers, was that it didn't matter what he said wrong, whether it was a name or something else.  It served no purpose to correct him.  He wouldn't remember, and it just creates extra stress for everyone if you do try to correct it.  You just gotta go with the flow.

[ Parent ]
Life with Father | 19 comments

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